Brooke Eby, Who Chronicled Life With ALS With Humor and Honesty, Dies at 37

 https://www.today.com/health/health/brooke-eby-dies-als-advocate-37-rcna589053

She turned a terminal neurodegenerative diagnosis into a movement, using candor, wit and humor to “really let ALS be heard.”

Brooke Eby, who transformed her diagnosis with amyotrophic lateral sclerosis into one of social media’s most compelling chronicles of resilience, humor and advocacy, helping change how millions of people understood a devastating disease, has died. She was 37.

When Eby was diagnosed in 2022 at age 33 after years of unexplained symptoms, she faced a prognosis that people with the disease know all too well: ALS is a fatal, progressive neurodegenerative disease with no cure and few effective treatments. Rather than retreat from public life, she leaned into it.

Her videos, often equal parts comedy routine and medical diary, documented the realities of losing mobility without surrendering her personality. She joked about wheelchairs, dating, awkward encounters with strangers and the absurdities of living with a terminal illness, drawing millions of viewers who found themselves laughing before they learned something about ALS.